Stories

Our son Edward, was born on 26th October 2017 in Bristol. I had an induction at 38 weeks due to us finding out at the anomaly scan that Eddie had Pulmonary Atresia with Intact Ventricular Septum. He was born weighing a huge 9lbs 1oz so weight was definitely on his side! When Eddie was born, and after a quick cuddle, he was taken off to new...

When I was 31 weeks pregnant, the doctors detected an irregular heartbeat in my son. We were referred to the fetal medicine doctors and fetal cardiologist, but as no structural problems were found, they told us not to worry, and that hopefully it will have improved by the time he was born. Noah was born in March 2019, after a routine scan detected that he was in distr...

Jay’s heart journey started before he was born. It’s was when I was pregnant with Jay during the 20 week scan we had in Port Talbot hospital. The midwife said that she was unable to see his heart properly and that we needed to go to Cardiff hospital for a more detailed scan.

Elain was born in March 2010 and shortly after diagnosed with Pulmonary Atresia, VSD and MAPCAs a complex form of Congenital Heart Disease. She was also diagnosed with 22q11.2 Deletion Syndrome.In June 2010, at 12 weeks, Elain fell extremely ill at home in Aberystwyth and following spending a night at the local hospital was airlifted the 150mile journey to the University Hospit...

My baby girl Lara had a heart surgery in Bristol when she was 4 months old this past January in 2014. My partner and I spent there about 3 weeks in Bristol and those were the most difficult and testing times for us... We were also away from our lovely 5 years old boy, who was missed by us very much. We had free accommodation in Ronald McDonald's house, another great charity tha...

Leon Montanari was born on 11th October 1996 in Singleton Hospital, Swansea, South Wales and weighed in at a healthy 8lb 12oz.

Our Daughter Megan Absalom-Lowe was born a premature baby who also had to undergo lifesaving heart surgery.